Unfortunately they weren't able to get Rebecca's breathing stabilized yesterday so they had to put her on a ventilator. The doctor said they don't like to do that because once you put a T18 baby they never come off. This was not good to hear but I do know, thanks to a T18 Mom's Facebook page that I joined, that this isn't always the case.
Because they put her on the vent and we're having trouble getting a tube in one of her veins (they were finally successful but it was hard because things aren't where they should be due to her extra chromosomes) they did not do the EA surgery. And then the doctor said she was too small so we needed to wait anyway.
I am waiting on a pass from my doctor and as soon as I get that my parents are going to take me to see her. I will have to come back here tonight but will hopefully be discharged tomorrow.
So at this point we are still praying for a miracle.
20 comments:
Praying!
Hope you are with her very soon.
Praying along with you! Hope you can hold her again very soon!
And we'll be praying for a miracle with you! You are absolutely not forgotten! Praying right now!
We're praying and offering up our stomach flu for her recovery and that she would be in your arms very soon.
And we are praying with you!
Beth, please feel our arms around you now...and our hearts with your sweet Rebecca...
Jesus Mary and Joseph we trust in you!
Oh sweet girl....praying with you and for you!
Sweet little baby. Praying for all of you. Kate.
I hope you are with her right now. How frustrating that Rebecca had to be transferred and they couldn't even do the surgery. Praying for your recovery too.
We are praying hard my sweet friend. Courtney and I are laying her in Mother Mary's arms. God is good. God is great. God is with you both!!
Beth, just take the days minute by minute and the diagnoses and new doctor recommendations as they come. Praying you recover quickly and are with her very soon. I know that separation must be incredibly difficult. Hugs to you.
I am praying for your little miracle girl.
I am praying for your little miracle girl.
Oh, sweet, precious, Rebecca - we are praying for you and thinking of you throughout our days! We are praying for your mama and daddy and your entire family as well!! How beautifully you glorify God the Father in INVERY SINGLE WAY! You are perfect!! Keep us all posted....
Praying for a miracle with you, Beth. I hope you can be with your sweet girl soon.
I will say a special intention for your tiny daughter when I say my Rosary tonight! I can't imagine how difficult this must be--God bless you and keep you in His loving care. <3
Hope you are well enough to see her very soon! Prayers continue.
Hope the mother child reunion is happening as I type. Prayers for fast healing and discharge.
Still praying, Beth, and enlisting everyone I know, too! I hope you have been able to be with her today.
Praying for you guys! And thank you for the update!
I cannot imagine what you are going through right now, not being able to be there with her. Prayers for you and your health and healing and of course for sweet Rebecca too. She is gorgeous!
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