Later, after Peter and Sarah left, we met with her entire medical team and the news was not good.
In addition to the esophageal atresia (EA) where the top part of the esophagus ends into a pouch and doesn't continue on into her stomach , they believe she also has a tracheoesophageal fistula (TEF). This means that the other portion of her esophagus which does go to the stomach has a portion that has fused with her trachea.
They were hoping to repair the EA yesterday but after arriving at Brenner, she was struggling so much to breath they ultimately ended up putting her on a ventilator. Because her esophagus is so tiny, they had a very hard time even getting her onto the vent. Apparently it took several skilled doctors attempting to vent her before they were successful. Dan said at one point there were over 10 people around her trying to keep her alive and get her on the vent.
It is the medical team's opinion, based on the trouble she had yesterday, that she would not survive the surgery. And now that there is a TEF involved as well, they are worried that they would get in there and there wouldn't even be enough esophagus to do the repair.
After that heartbreaking news we were left discussing our options. After many conversations and many more tears, we are still trying to decide exactly which option is best for Rebecca. But whatever we decide, it will end with us saying goodbye to our little one.
Please pray for wisdom, peace and comfort.