In June of 2005 , I watched a documentary on TLC called, "The Boy Whose Skin Fell Off".
It was the story of Jonny Kennedy. Jonny was a 36 year old from the UK who suffered from dystrophic epidermolysis bullosa, which meant that his skin literally fell off at the slightest touch, leaving his body covered in agonizing sores and leading to his final fight against terminal skin cancer.
This documentary left me changed. I was not able to put it out of my mind. Nothing I had ever seen on TV had touched me like this.
I had never heard of this disease until I saw this documentary and I was horrified by it. This man lived 36 years in agony. He was born with no skin on his left leg. He was in pain virtually all of his life. I could not even begin to imagine how hard every day of his life was for him.
His mother spent 36 years taking care of him, redressing his bandages daily as he screamed out in pain. As a mother, I could not imagine how hard that must have been for her.
Yet this man (who looked like a frail little boy covered in scars) did not let his pain stop him. He started DebRA, a charity to raise money to promote awareness for and to find a cure for ED.
Right after he was diagnosed with skin cancer, he decided he wanted to do a documentary on his disease to help others better understand it. And that's how "The Boy Whose Skin Fell Off" was born.
I watched this show and cried through the whole thing. I felt horrible for this man and the pain he suffered as well as for the estimated 1 in every 50,000 children born with some form of it.
And for months and months after I saw this show, I thought about this disease and I prayed. I prayed for all the people suffering from this and I prayed for a cure.
I didn't know what else to do. So I enjoyed my healthy children. I watched them growing up with no pain and no suffering and all I could do for these other children that weren't so lucky was pray.
Yesterday, as as I sat at my breakfast table reading the newspaper, I saw this article.
It was a short article but it made me rejoice! A little boy from Minneapolis has been TREATED and CURED of this disease using stem cells from umbilical cord blood and bone marrow.
If that's not a miracle, I don't know what is!
And I am sure that Jonny Kennedy is celebrating with the angels right now!
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This edition of Miracle Monday is now closed. If you have a miracle you would like to share, please come back next Monday!