Monday, June 30, 2008

Miracle Monday - Baby Grace Update

Welcome to another edition of Miracle Monday!

I would like to thank everyone for their kind words last week. It is nice to know that even though I am not getting a lot of miracles each week, the ones that are being written about and linked back here, are inspiring to those that visit.

This week I would like to give an update on Baby Gracie. Gracie's mom, Amanda, posted this timeline on their Caringbridge site highlighting all of the medical ups and downs of Gracie's life.

Through all of this they have not lost their faith in God and to me, that is a miracle in itself! Notice at the bottom, Amanda calls Gracie's life "112 days of MIRACLES"! I would agree!

GRACIE JEAN LOCKYER
Born March 7, 2008
Life Flight to Duke March 8
March 9-12 CODED w/CPR--Apnia spells-Quit breathing in daddy's arms--Heart rate drops
March 12- Heart rate drops (5 in 10 minutes)
March 13-Open Heart Surgery-came off EKMO
March 14-18--Great recovery (extubated March 17, going to stepdown on March 19)
March 19--CODED--1 hour of CPR (No brain damage) Placed back on EKMO
March 23- Came off EKMO on Easter Sunday
March 25- Chest closed
March 26-April 6-- Grim time--Gracie filled with fluid, had many strange heart rhythms, some heart drops
April 7-- Doctors feel Gracie is turning the page towards recovery
April 9-- Gracie has 4 heart blocks-Heart "flat lines"--CODES (Code alarm is sounded 3 times) CPR w/once again, no brain damage!
April 10-15-- Gracie is hooked up to external pacemaker which catches 30+ heart drops (heart blocks)
April 15- Gracie has surgery for internal pacemaker--(Post surgery has very low heart rate and pacemaker range has to be changed)
April 16-19- Gracie has numerous heart drops with very little stimulation. Pacemaker catches heart rate.
Doctors find clot in atrium.
Fluid develops again--worse than ever and Gracie is put on Jet Ventilator (very high support)
April 19-- Doctor calls family in and says Gracie looks "grim" and may not survive the day
RECOVERS FROM DEATH
April 22--Gracie has heart cath, receives Broviac line in liver and cut-down arterial line. Doctors find she has a 3:1 Sano shunt--(very rare).
April 26- Gracie CODES AGAIN w/ pacemaker. CPR and emergency medicines!
May 2-- Gracie has collapsed lung for 2 hours when chest tube comes loose
May 6-- Gracie is diagnosed with Hepatitius C
May 9-- Hepatitus C test proven false!
May 12-- GRACIE PLACED ON HEART TRANSPLANT LIST
May 16-- Gracie has spinal tap to check for meningitus
May 23-- Gracie's T-Cells come back low and doctors send tests for Digeorge or SKIDS--Gracie put in isolation.
Left chest tube is pulled!! AMEN
May 26-- Initial test show Gracie is partial Digeorge--Gracie comes out of isolation
May 29-- Echo discovers another clot in Gracie's heart (atrium)
May 30-June 11- "Feeding and Growing time"
June 10- Right chest tube pulled!!
June 11--Gracie placed back in isolation b/c of late Digeorge results.
Mommy holds Gracie!!
June 12-- Gracie's lung collapses and she receives a second spinal tap because of persistent high fevers! Gracie gets another right chest tube!
Daddy holds Gracie!!!! First time in a long time!
June 13--Gracie is extubated for almost 6 hours!
June 14-20-- Waiting to extubate again. More high fevers! Right chest tube pulled again (June 20). Heart medications successfully weaned.
June 23-27-- Gracie battles Infection and puffiness once again.
June 28-- GRACIE RECOVERS AGAIN AND LOOKS TOWARD EXTUBATION ON MONDAY OR TUESDAY!
JUST TELL ME....
IS HE ABLE?
I KNOW HE IS!
HER LIFE IS A TESTAMENT TO HIS POWER!
112 DAYS OF MIRACLES!

Please keep praying for Baby Gracie.

If you would like to share a miracle, it's simple. Just post a miracle on your blog and link it back here using Mr. Linky below. Please mention "A Mom's Life" and my URL in your post. And if you want, you can use the Miracle Monday button in your post as well.

PLEASE NOTE - when linking make sure to link to your Miracle Monday post. Do not link to the front page of your blog. If you have any questions, email me and I will be glad to help you. My email address is in my profile.


Have a great Miracle Monday and thanks for participating!

post signature

8 comments:

Rebekah said...

My nephew was born with a heart defect and had open heart surgery when he was 3 weeks old. It was a rough start for Asa and it was thought that he would have to live with a pace maker the rest of his life.

But not so. Asa will soon be 4 and is without a pace maker. Other than the scar down his chest, no signs of any heart defect.

God is truly Amazing!

jennwa said...

Gracie is truly a miracle. I pray for them everyday. I can not wait until Gracie is able to go home.

rhemashope said...

I will be praying for baby Gracie.

I linked to a miracle for us. I posted it a couple weeks ago, but we are still rejoicing in it. Thanks for Miracle Monday.

HRH said...

Sending prayers. What a story.

Kellie said...

Since I am a newcomer to your blog, I had not heard about Baby Grace before.

Is she a trooper or what?

I think your MM posts are great. Its up lifting to hear what God is doing the lives of others!

Sandy C. said...

Grace is such a fighter. I used to work with cardiac infants for years in the NICU, and I can only imagine the heart-break and helplessness. My thoughts and prayers are with her.

Denise said...

My prayers continue for baby Gracie.

Sarah said...

praying for Gracie and family...